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Group Information
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| Overview & Vision: |
Vitiligo (vit-ih-LIE-go) is a disease that causes the loss of skin color in blotches. The extent and rate of color loss from vitiligo is unpredictable. It can affect the skin on any part of your body. It may also affect hair and the inside of the mouth. The main reason and cause of vitiligo is the fact that the body itself decides to destroy its skin pigment. Without a doubt, this is an irregularity of the system. However, the main culprit for this setback is the immune system. Doctors currently can’t predict whether the Vitiligo on a person will spread, and how fast. Currently, there is no known cure for Vitiligo, but treatment may be able to make skin tone appear more even. However, treatments can be time consuming and expensive, and often not covered by health insurance. Because Vitiligo affects a person’s appearance, it is considered as a “cosmetic problem.” However, it is more than a “cosmetic problem.” It is a medical condition. People who have Vitiligo have a higher risk of getting some other medical conditions – such as hearing loss; painful sunburns; develop other autoimmune diseases; changes in vision/eye problems; anxiety and depression. Vitiligo is not contagious, and it is not life threatening. However, it is life-altering. Some people develop low self-esteem. They may no longer want to hang out with friends. They can develop serious depression. Most people have Vitiligo for life, so it’s important to develop coping strategies. Researchers have found that many people who have vitiligo often feel anxious and embarrassed around others. It’s easy to understand why. People often stare and make rude remarks. Some people are obviously frightened. Facing this day in and day out can take a toll on a person’s overall wellbeing. Vision: - Raise awareness about vitiligo and the dermatological and psychological impact the disease has on those affected by it. - Partner with healthcare professionals, educational institutions and social workers and activists to work diligently toward securing grant funding and increase sponsors and donors. - Encourage governmental agencies to make vitiligo research and advocacy efforts a high priority. - Improve the care of patients with vitiligo by providing medical professionals with the best available information about vitiligo and its treatment. - Improve teacher and staff training in schools so they are prepared to provide support to parents and students cope with this disease.
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| Leaders: |
Open to all with a passion to help people with such diseases.
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| Rationale: |
Vitiligo is not contagious, and it is not life threatening. However, it is life-altering. Some people develop low self-esteem. They may no longer want to hang out with friends. They can develop serious depression. Most people have Vitiligo for life, so it’s important to develop coping strategies.
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| Goals and Objectives: |
• Need to create more awareness.
• Educate Children, Parents, Teachers and others about the affects of Vitiligo and how they can help. • Need better coping strategies. • Need More research on this disease. • Need more and better treatments. • Need more supportive doctors and healthcare professionals • Need emotional support from Family, Friends, Teachers and Co-workers |
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